Academic institutions, civic agencies at all levels, and NGOs of all kinds have joined what’s being called a “data revolution” by making the information they collect and use publicly available. How can this “open data” movement advance and accelerate clinical and translational research to improve health and eliminate health inequities? The CTSI Open Data Initiative will bring together under one umbrella projects currently underway at UCSF and other UC campuses along with their government and community partners to explore fruitful routes and best practices for maximizing the applicability and interoperability of publicly available (and potentially available) datasets, including clinical and population health data; economic and demographic data; transportation and planning data; and research datasets that could influence and improve the health care and health status of individuals and populations.
Activities at UCSF that fall under the rubric of this initiative include SFHIP (including HUMS), CELDAC, and DataShare. Partners in San Francisco include the Hospital Council of Northern and Central California, SF Department of Public Health, DataSF/Mayor’s Office of Civic Innovation, SF Police Department, SF MTA, SF Rec and Park Department, District Attorney’s Office, and other city offices and agencies. Community partners include the San Francisco health disparities and health parity coalitions, healthy retail coalitions, alcohol prevention coalition, and nonprofits such as the YMCA. Resources would support the application and use of open data to meet the aims and activities of those health improvement and disparities-focused partnerships. Resources would also support the development of evidence-based health and healthcare apps and other technology tools (registries, health information exchanges, new and improved mobile devices). Activities would include Translational Science Hackathons and intensive workshops to identify mutually-held incentives, establish cost-savings goals, and activate assets and resources to maximize the impact of collaborative efforts.
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